Novel Therapy for NF2

Please help us raise money to end NF2 through gene therapy.

NF2 is a disease that allows tumours to grow on nerves. They can form anywhere, but tend to favour the central nervous system of the brain and spine.  Nerve damage from tumour growth is debilitating for people with NF2 and causes degenerative weakness and total loss of many functions.  A person with NF2 can have a limitless number of tumours to deal with along with degenerative hearing, vision, physical and mental challenges.  Numerous operations, chemotherapies and other treatments compact the disease further.



NF2 BioSolutions is confident that gene/cell/immuno therapy for the disease will be a cure and halt the progression. Here are currently the 4 different novel approaches that we are accelerating:


For the latest research progress update: https://nf2biosolutions.org/gene-therapy-and-nf2/research-initiatives/research-update/


NF2 BioSolutions foundation was created by mostly medical personnels and bioscience researchers that are themselves (or a family member) directly impacted by NF2.  Therefore the motivation, purpose, passion and desire to succeed are paramount.

Other rare disease foundations have successfully funded and pushed for a gene replacement treatment of their rare diseases, and NF2 BioSolutions wants to follow that same model.


Thank you for your support, if you have any questions contact gilles@nf2biosolutions.org


We are a 501(c)3 charitable organization. All donations are tax deductible. Or tax ID # is 83-0940046

我们的捐赠者

SU

Stanley Ulman

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$103.62

JB

Joan Borkow

SF

STEPHEN FISCHER

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$258.57

our son Eric and our grandson Maxwell both have NF2. Eric has and ABI and has had multiple surgeries. Maxwell has been tested but at 4 years old shows no signs yet. Monitoring will begin soon. Steve & Barb Fischer

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Prakash

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$516.84

DO

Deian Owen

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$250

Thank you for your amazing efforts ❤️

SL

Anonymous

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$77.79

For the Henwood Family - Go Navy!

AF

Adam Ford

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$206.92

CM

Chris Mason

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$258.57

My thoughts are with you all!

LL

Lawrence Lupus

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$77.79

For AJ, by Larry and Conni Lupus

JM

Jimmy Moore

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Ansumana

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$20.97

D

Diane

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$103.62

CB

Craig Baumann

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$3,000

SM

Stefania Mostaccioli

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$125

from Italian NF2 & Schwannomatosis Association

SM

Stefania Mostaccioli

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$1,000

from the Italian NF2&Schwannomatosis Association

ML

Mary Lacy

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$300

For A.J. Henwood from your URA 10U baseball friends. We’re all fighting with you!

C

Charlotte

SM

Susan Joan Mauriello-Orlando

LW

Lawrence Williams

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$206.92

FOR A.J. HENWOOD - NEVER GIVE UP! AUGHT ONE!

KS

Kurt Sommer

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$125

RK

Rina Kapoor

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$51.96

To help A.J. Henwood from our community . Please find a cure . God bless.

LA

Luisa Abreu Santos

已捐赠

$51.96

JG

Jean George

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$516.84

Dear Nicole, I hope this helps a little bit for research in NF2. Love, Aunt Jeanette

MZ

ZEITZ

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$103.62

EW

Eric Walter

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$125

So inspired by how this is coming together! Can't wait to see where it goes!

TD

The D'Iorios

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$103.62

Heroic endeavor by this NF2 team to make change happen.

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GivingTuesday Fundraiser for NF2 Brain Tumour Gene Therapy Cure

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€51.92

MD

Molly Doi

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$51.96

In honor of Liv Atlan

MR

Margaret Reynolds

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$1,405

Margaret’s Facebook Fundriaser

JV

Jill Velez

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$1,040

Jill's facebook birthday fundraiser.