🎂 A Birthday Wish Years in the Making

This year, I'm turning another year older — and instead of gifts, I'm asking for something that means everything to me.

I'm raising $2,200 in honor of my birthday on April 22nd for The Myositis Association (TMA), the organization working hardest to find treatments and a cure for myositis — a group of rare, devastating autoimmune diseases that attack the muscles.

This cause is deeply personal to me.

I watched my mother lose her life to Inclusion Body Myositis — IBM — a relentlessly progressive disease with no approved cure. IBM took so much from her, slowly and cruelly, the way it does. And then, in 2022, I received my own IBM diagnosis. So this isn't just advocacy for me. This is survival. This is hope. This is for her. This is for myself and all the others like me.  

I now serve on the Board of Directors of The Myositis Association and lead The disABLED Company™, dedicated to accessible living and disability advocacy. I've seen firsthand what TMA does for this community — the research they fund, the patients they support, the families they hold together when a diagnosis turns everything upside down.

IBM currently has no approved treatment or cure. Research funding is everything. Every dollar TMA receives goes toward changing that — for the next person diagnosed, for our children, for our families.

On my birthday, the greatest gift you could give me is helping us get one step closer to a world without myositis — a world my mother deserved to see.

💙 Will you help me reach $2,200?

👉 Please donate to my birthday campaign (27 again for all those who know me :-) 

Every dollar counts. And every dollar brings us closer.

Thank you from the bottom of my heart. — Alicia

#MyositisAwareness #IBMmyositis #BirthdayForACause #TMA #RareDisease #TheDisabledCompany #ForMom