Let's fight !
Before June 24th, 2018, I was a fairly normal person; a wife, a mom trying to keep up with two toddlers, and on an awesome career path. The next, I was someone with Neurofibromatosis II; I had multiple meningiomas, an acoustic schwannoma in my left ear, and some ependymomas within my spinal cord; 23 tumors total. I made several attempts to maintain “normalcy” upon being diagnosed; I tried medications, had two craniotomies, met with specialists, and more. What I realized is that there is no “normal” with NF2. There is no cure, and not a lot of awareness. But, there is a lot of hope! Hope is what keeps me going. It gets me through every day!
Please donate to the nonprofit NF2 BioSolutions, they are made of people like me, 100% volunteers, touched by NF2 and together we are currently jumpstarting and supporting research for a cure in 3 leading gene therapy labs.
Here is my blog, that describe my NF2 journey: