2026 RUNX1 Patient Meeting

“Catalyzing Change: The Next Chapter in RUNX1"

RRP’s RUNX1 Patient Meeting is designed to support, inform, and connect individuals and families affected by RUNX1-FPD. 

This year’s gathering will provide the latest updates on RUNX1-FPD research and clinical trial progress, presented in a clear and accessible way for our patient and family community. We also aim to provide opportunities for sharing personal stories, offering peer support, and providing practical strategies for managing uncertainty. 

We are also considering programming for children if there is enough interest and capacity. If you are a parent, please respond to the question near the end of registration to indicate your interest. 

Whether you're newly diagnosed, caring for a loved one, or seeking connection with others on a similar journey, we invite you to join us for a meaningful two days of shared experiences, learning, and support. 

RRP covers travel and accommodation costs for patients and one close family member who attend the patient meeting events together. Once you have registered, we will be in touch about booking your flight(s) and hotel rooms.