Live and Love Rare
Your generous donations and support will help the 150 families and counting impacted by a rare chromosome 8p disorder. Some of our genes are missing, some are duplicated, and some are flipped around. Researchers are trying to help uncover which genes are crucial, how they work, and what treatment options are possible. Without your donations, the individuals face daily challenges in normal things most take for granted like walking and talking. They also deal with serious health impacts with cognitive impairment, seizures and heart defects. We are working very hard to help our beautiful 8p heroes. Join the Cause.