Until very recently, and still in many ways, I DO NOT KNOW WHAT I NEED, as far as assistive devices go. I don't know the full extent of what is out there that could help ease my #chronicpain by allowing me to get more done with less spears.
That means I've been on my own and doing trial and error while in incredible pain and with less brain power to find the tools that will make my days more bearable. The supposedly simplest tasks actually take a ridiculous amount of effort and concentration that are unavailable to me.
I have at least finally realized and started utilizing a cane. Wheelchairs are too expensive and impractical for where I live (accessibility is pretty shit; stairs everywhere), so for now I just use the ones at airports (lifesavers) and the motorized ones at stores if they have them.
But I also realized I need other things. Shower chair, adjustable kitchen chair for doing dishes and cooking, a grabber for things out of reach so that I don't have to get up or walk that far, other things I don't yet know the names of or where to get them. I know I want a juice pourer, and something that opens jars and such, because sometimes it is such agony to lift even a cup. I'm not exaggerating; I've broken into tears at times because it just hurts that bad and I'm so frustrated.
I actually started adding a few things I need to my wish list, so that I don't forget. I have started this Accessibility Fund, just like I started the PMW Speaker Fund, and folks can help out directly.
My wishlist: http://www.amazon.com/registry/wishlist/6PEZXDLJYYYW
Because honestly, this is ridiculous that so many of us don't have what we need because either there isn't a "market" or because insurance doesn't think we need it. So, you can purchase an item directly from my wishlist and/or give to this fund for anything I may have forgotten or discover.