At Melanin Children Matter, we support kids with rare diseases like SPTLC2-linked ALS and autism. We believe all kids deserve a chance to thrive, no matter their condition. We're working to make rare diseases easier to understand and manage. We also want to make sure black and brown communities get better healthcare. We push for early testing to give families important info for their kids' care. Our goal is to make sure every child gets the help they need, no matter who they are or what they're going through.