2024 Butterfly Parade and Community Walk

Ten years ago, our Nora Grace was diagnosed with Turner Syndrome prenatally. Because of this early diagnosis Nora has been supported through birth, extended hospital stays, and countless appointments. Through Turner Syndrome Colorado, and the eXtraordinary Kids Clinic at Children's Hospital Colorado, Nora has experienced excellent care and understanding of her diagnosis. She is supported in her growth and development and attends regular appointments in endocrinology, cardiology, pulmonary, ENT, neuropsychology, and has access to further supports as needs arise. Without this clinic, and the wonderful relationships it brings, Nora might not be where she is today: which is thriving. 

Because of all of the support we have been blessed with, both through Children's Hospital Colorado, and from all of you, Nora is able to take on clogging, skiing, swim team, biking, camping, and school with confidence and joy. She loves reading, and is endlessly curious about her world. There is still so much to learn, and many years of support needed for her and many other girls and women. 

Join us on September 22nd at Hudson Gardens in Littleton CO from 11am to 1:30pm as we gather in person to once again celebrate the people in our lives who have Turner syndrome. 

Friends and family members are encouraged to make a donation in honor of their loved one with Turner Syndrome. All donations will be used to support the important programs of Turner Syndrome Colorado, including the eXtraOrdinary Kids Turner Syndrome Clinic. Turner Syndrome Colorado needs to raise $75,000 to cover the costs of the Clinic for the next two years.

If you would like to create your own team and fundraise for this event on your own page, please click on the link that says, "I want to fundraise for this."  When you create your own team, add a personalized paragraph to the top of this information. (Note: if you do not receive an email from Donorbox to setup your account right away, please email us at turnersyndromeco1@gmail.com for help).

After you donate, you will be directed to the REGISTRATION page to sign up to attend the event in person.  We will have food trucks, fun activities for the kids, and community resources.  The children will be able to participate in the Butterfly Parade - dressing up is encouraged!  After everyone has a chance to picnic, we will gather in teams to walk through the beautiful Hudson Gardens.  Team signs are encouraged!  If you are not directed to the registration page, return here to use this link to register: https://donorbox.org/events/614138